Yesterday we took Sam to his 3rd visit to the feeding clinic. The doctor's and specialists were very pleased with Sam's progress. The neuro-developmental pediatrician felt that Sam required so much less suctioning which is a great sign. They also noted that Sam is much more vocal with the intent to communicate and he is moving a lot more as well. During trials where we had to help Sam facilitate a swallow he did well. He actually swallowed several times with stimulation. We still have a very, very, very, long way to go before we can even think about trying to give him food or liquids, but it is a good sign that he can be stimulated to swallow.
About St. Jo's...
St. Jo's is an excellent feeding and swallowing center for any child with feeding issues from texture sensitivity to situations as severe as Sam's. In my experience with feeding and swallowing disorders I have had a lot of families that went to St. Jo's and some loved it and some hated it. They are very set in their philosophy which I can understand may be a little scary for some parents that do not have a medical background. To my understanding they do not give up easily on even the most difficult situations. I think they are very knowledgeable and unpretentious. Anytime I have called with a question or concern my call has been returned that same day. I will add a link if anyone is interested in the program.