Thursday, June 28, 2007
About St. Jo's...
St. Jo's is an excellent feeding and swallowing center for any child with feeding issues from texture sensitivity to situations as severe as Sam's. In my experience with feeding and swallowing disorders I have had a lot of families that went to St. Jo's and some loved it and some hated it. They are very set in their philosophy which I can understand may be a little scary for some parents that do not have a medical background. To my understanding they do not give up easily on even the most difficult situations. I think they are very knowledgeable and unpretentious. Anytime I have called with a question or concern my call has been returned that same day. I will add a link if anyone is interested in the program.
Tuesday, June 26, 2007
Monday, June 25, 2007
Saturday, June 23, 2007
I actually wrote this right after Sam came home from the hospital in October. My pediatrician thought it would be a good idea for me to type up a history and hand it to any new Dr. Sam might see so that I would not have to relive our experience over and over again. God bless that man!
Things are very different for Sam now then they were 7 months ago. We know that Sam's hearing is normal, he does not need as much suctioning, his vocal cord paresis probably resolved as he has very strong vocal quality, his face is more symetrical, and his movements are much stronger. We still have a huge road ahead of us. There is so much we still do not know. But what we can tell you is that Sam has the BEST team ever!!! We are very lucky that all of his care givers are so dedicated and competent this of course includes all of his therapists, nurses and doctors. So we are just going to keep on keeping on and do the best we can.
Friday, June 22, 2007
Yesterday we took Sam to an osteopathic movement treatment center in the Bronx. Apparently these doctors feel that certain manipulations can help a child or an adult achieve there maximal potential. I guess it is like cranio sacral therapy but on a different level. This particular doctor felt like Sam could benefit greatly from this treatment. So along with the 20 other specialists we are taking Sam too here is another one to add to our list. Sam is doing pretty well considering all of his obstacles. He has been managing his secretions better, which basically means he has not turned blue from drowning on his own saliva for a while. Sam's head and neck strength is definitely improving. He is not yet sitting up but we know in time he will get there. Cognitively I have to say Sam is pretty smart. He is following directions, making choices, starting to vocalize a psuedo "no" and has a very specific vocalization for "more." I know that is amazing for any 10 1/2 month old, but what do you expect with a mom who's an SLP.