Today is Sam's 2nd birthday. It is hard to believe that 2 years have gone by already. The expectations I had for my son certainly exceed the reality of where he is today. There are many many things that we are thankful for. Sam is able to go for very very long periods of time without suctioning. He is laughing more, playing more, moving more, he is sitting up independently. At this point I would have hoped that Sam would be eating even small amounts by mouth, crawling, babbling, etc... I would have hoped that at this time Sam would be fed 4 times a day by his tube without pain or discomfort. We are still trying to get to the bottom of Sam's feeding issues. We are still running every single day to doctors and therapists trying to find the best way possible to make Sam comfortable. We even had to cancel Sam's birthday party because he was in such distress when we fed him.
Yesterday we were at the hospital with Sam's GI doing an upper GI series and taking bloods. Today we are seeing a new neurologist to rule out other possible etiologies behind this feeding issue. So wish us luck and I will keep everyone posted via blog postings. I also apologize for not returning calls and talking on the phone but I hardly have the strength to keep running with Sam like this. I wish I could be more of a friend, a daughter, a sister, wife, etc... Right now I only have enough energy to be a mother. In the meantime here is a montage that I created in a very short time. I wish it was more creative but this is Sam over the past 2 years.